Rare disease - causing a little girl to turn to stone!

tiarachel85 · 08-10-2008, 03:13 AM

can I ask why my last post about rare disease was deleted? i am really working for a good cause.
I posted:
I was really speechless when I read this article. So i thought to share with you guyz:-
It's the story of a young girl who has a disease causing her soft tissue - muscle, ligaments, tendons - to turn to literal stone. It's like her skeleton is forming a skeleton, which will eventually immobilize her.
READ FULL STORY AT : Fibrodysplasia Ossificans Progressiva: FOP Patient's Story
IF YOU WOULD LIKE TO SEE SOME OF THE PATIENTS PHOTOGRAPHS: Fibrodysplasia Ossificans Progressiva: FOP Gallery
PLEASE SUPPORT THE GOOD CAUSE!

**LobBob** · 08-10-2008, 09:11 AM

Posting links for us to visit without participating in any of the other Threads, Forums makes us think you're another user coming here just to Advertise. Our staff had deleted your post on the pretext that you're advertising.

In any case, i've changed the thread title to what it was previously.

Clear · 08-10-2008, 09:50 AM

So we cant post links like that?

**LobBob** · 08-10-2008, 07:12 PM

You're allowed to. But as we see it, most users who come here for Advertising purposes, they Register, Post their Link(s), then leave. Those are common cases in about any Forum on the net.

Nuff' said.

mark1993 · 08-28-2008, 01:43 AM

is the stoned girl story true?

Clear · 08-28-2008, 06:29 PM

Quote:

Originally Posted by mark1993

is the stoned girl story true?

From what he says I think it is true I wish her good luck with her life

Jak · 08-30-2008, 01:27 AM

The story is true, but the disease is very rare.

About only 100 people in the world have it.

Clear · 08-30-2008, 12:57 PM

wow then thats a non common disease but its really deadly. Im glad that only 100 people have it because if it was common then I would feel to sorry for a lot of people

08-10-2008, 03:13 AM	#1 (permalink)
tiarachel85 Junior Member Last Online: 08-10-2008 12:09 PM Join Date: Aug 2008 Age: 28 Posts: 1 Points: 42.00 Bank: 0.00 Total Points: 42.00 Donate	Rare disease - causing a little girl to turn to stone! can I ask why my last post about rare disease was deleted? i am really working for a good cause. I posted: I was really speechless when I read this article. So i thought to share with you guyz:- It's the story of a young girl who has a disease causing her soft tissue - muscle, ligaments, tendons - to turn to literal stone. It's like her skeleton is forming a skeleton, which will eventually immobilize her. READ FULL STORY AT : Fibrodysplasia Ossificans Progressiva: FOP Patient's Story IF YOU WOULD LIKE TO SEE SOME OF THE PATIENTS PHOTOGRAPHS: Fibrodysplasia Ossificans Progressiva: FOP Gallery PLEASE SUPPORT THE GOOD CAUSE!

08-10-2008, 09:11 AM	#2 (permalink)
LobBob Administrator Last Online: Yesterday 12:32 AM Join Date: Jun 2007 Location: Currently@FzP, Going behind you Posts: 422 Points: 51,274.02 Bank: 114,966.20 Total Points: 166,240.23 Donate	Posting links for us to visit without participating in any of the other Threads, Forums makes us think you're another user coming here just to Advertise. Our staff had deleted your post on the pretext that you're advertising. In any case, i've changed the thread title to what it was previously. __________________ Feel free to PM me if you have any questions, comments, concerns in regards to anything pertaining to the forum. This is to include if you feel a member or moderator has done something wrong. Get your friends to join us here at ForumzPlanet! Join us on IRC! \| Rules! Applying to be a Moderator for ForumzPlanet? Look Here! Register now to gain access to Registered Forums now!

08-10-2008, 07:12 PM	#4 (permalink)
LobBob Administrator Last Online: Yesterday 12:32 AM Join Date: Jun 2007 Location: Currently@FzP, Going behind you Posts: 422 Points: 51,274.02 Bank: 114,966.20 Total Points: 166,240.23 Donate	You're allowed to. But as we see it, most users who come here for Advertising purposes, they Register, Post their Link(s), then leave. Those are common cases in about any Forum on the net. Nuff' said. __________________ Feel free to PM me if you have any questions, comments, concerns in regards to anything pertaining to the forum. This is to include if you feel a member or moderator has done something wrong. Get your friends to join us here at ForumzPlanet! Join us on IRC! \| Rules! Applying to be a Moderator for ForumzPlanet? Look Here! Register now to gain access to Registered Forums now!

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08-10-2008, 09:50 AM	#3 (permalink)
Clear Member Last Online: Yesterday 12:01 AM Join Date: Jul 2008 Location: earth Posts: 179 Points: 3,285.45 Bank: 0.00 Total Points: 3,285.45 Donate	So we cant post links like that?

08-28-2008, 01:43 AM	#5 (permalink)
mark1993 ForumzPlanet Registered Last Online: 11-14-2008 09:32 PM Join Date: May 2008 Age: 15 Posts: 276 Points: 1,019.95 Bank: 0.00 Total Points: 1,019.95 Donate	is the stoned girl story true?

08-30-2008, 01:27 AM	#7 (permalink)
Jak ForumzPlanet Registered Last Online: 10-30-2008 07:27 AM Join Date: Jun 2008 Location: Hueco Mundo Posts: 441 Points: 577.01 Bank: 0.00 Total Points: 577.01 Donate	The story is true, but the disease is very rare. About only 100 people in the world have it.

08-30-2008, 12:57 PM	#8 (permalink)
Clear Member Last Online: Yesterday 12:01 AM Join Date: Jul 2008 Location: earth Posts: 179 Points: 3,285.45 Bank: 0.00 Total Points: 3,285.45 Donate	wow then thats a non common disease but its really deadly. Im glad that only 100 people have it because if it was common then I would feel to sorry for a lot of people

Rare disease - causing a little girl to turn to stone!

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